Facioscapulohumeral Muscular Dystrophy (FSHD)… the most prevalent form of Muscular Dystrophy, is a devastating, muscle-wasting disease that impacts the lives of an estimated 1,500 of our friends and neighbors in the Pacific Northwest. As one of the many families personally impacted, I am volunteering to coordinate the area’s inaugural Pacific Northwest Walk & Roll to Cure FSHD to raise vital funding and awareness.
All proceeds from the event benefit the FSH Society, a 501(c)(3) charity dedicated to solving FSHD. The FSH Society has led the way in the fight against FSHD thanks almost entirely due to generous donations from the Society’s members and those who want to make a difference such as people like you. They have become a world leader in serving patients and driving research for treatments and a cure. Plus, the organization holds a coveted Charity Navigator four-star rating, demonstrating that it is worthy of your trust.
- Saturday, Sep. 22, 2018
- Location: 531 31st Ave SE, Bradley Lake Park, WA
- Phone: (253) 732-7798
- Time: 8:00 AM to 1:00 PM
- Price: free - with donation recommended